HI,
Anyone here on Mabthera? If so, could you please tell me what the criteria is to qualify for it on PBS in Australia?
I have had the worst 3 months. Have only had one pain free day, and that wasnt even a full day. Today I have it in my right hip and left ankle, so walking isnt really a fun option. I have it in my left palm and fingers and in my right wrist, not killer pain there yet or I wouldnt be typing, but it wont be long I imagine.
Annette from Aus
hi,
my husband, who`s the only bread winner in the family has started two
years ago something strange in his wrist which has been diagnosed as
palindromic rheumatism. Since the beginning, the flares-up come about
two weeks apart. He is on prescriptions, but our problem right now is
the fever, quite hight fever, the same pattern, aprox. two weeks apart.
He is not feeling well but he has to go to work. The pain from PR is
almost constant but not at a high level, only from time to time he has
a flare-up but not at the some time with the fever.
So, das anybody experience something like this?
Thank you ,
Anca ,
HI There,
How are you all? the group has been quiet so Im assuming we are all coping with our pain best way we can. Im finding now Im not getting a rest between flares, Im in pain somewhere all the time. Mainly my right wrist and hand, never lets up, so typing is a painful business.
Just wondering if any of you have experienced this and for how long and has it ever gone back to flares and good days.. or can I expect just constant pain for the rest of my days?
Regards
Annette from Aus
Hi, I just found his group I was diagnosed with palendromic rheumatism
about 6 months ago. I was quite relieved to actually get a diagnosis
as I thought I was cracking up, always in pain with something or
another. I have had trouble for about 3 yrs now in different joints in
my body and the doctors in my local surgery have treated me for
housemaids knee, tendonitis in my wrists , muscle spasms in my neck
and various other ailments. It seemed like there was always something
wrong with me. I have had to give my shop up I ran a grocers shop that
sold friut and veg too but could not manage all the heavy lifting
anymore, took lots of days off and had to pay someone to do my
job.plus standing in the cold all day made me worse. I am currently
taking sulfasalazine 500mg and tramadol and diclofenac. The last time
I saw my rehumatologist she thinks the sulfasalazine are not helping
me I wondered If anyone has had success with any other types of meds
in that range. As when I see her next time she says she might try
something else. Jan
HI Karen,
Injecting Methotrexate?? How much will you be injecting how often? Im on 30mgs weekly in tablet form.Have you been taking it in tablet form until now and may I ask how much please? Ive had to go of Plaquenil becuase it was affecting my eyes and my flares are now terrible again. The Plaquenil took most of the swelling away and shortened the lenght and severity of flares. Now Im back to square one.
Annette from Aus
Hi Barbara,
Have been on Humira for about 2.5 years now, they may want to switch me to enbrel, as dosent seem like the Humira is doing anymore for me. But I also have found over the years if wait until acholol wipe dries, that is does help some. However the Humira does burn some either way, havent had the itching that you speak of thou. Hope that this helps some and best of luck to us all with this lifes menace.
Bill
Hi, I've been off the group for a while. I just thought no one was
of all posts. You may have a short wait for me to get back to the computer and
approve your
post. Please forgive me for not being on it 24/7. This should make it much
harder for the
spammers though.
Hugs
Pam
To the list owner -- could you please start moderating messages so we
don't get the junk mail that has been coming through? At least
moderate new members for a bit until you know whether they are spammers.
I really don't want to unsubscribe, but I can't stand spam.
Thanks
Has anyone had any experience sleeping on a memory foam mattress? I have heard raves about it but not actually from a person who has a condition such as ours ....the achey body etc. They are really pricey but I'm getting desperate for a good nights sleep. Anyone?
Diane Arthurs